Lymenaide

Federal Bill Information
Lyme and Tick-Borne Diseases Prevention,
Education and Research Act of 2009
U.S. House Bill HR 1179
Actions needed by individuals, organizations and businesses

There are links on the website to find your representative and how to contact them. The site also provides samples of what to say when you call and letters you can adjust to be addressed to your representatives and signed from you. (Check their spelling and grammar, I decided to write my own.)

It takes a little time but it is really important for all of us to get bills like this to pass

follow the link:
http://cwork.com/

1 TBS almond butter or other nut butter
1 pinch nutmeg
1 pinch cardamom
1/4 tsp cinnamon
1 cup soy or unsweetened rice milk
1/4 tsp real vanilla extract
1 medium banana
___________________________

Put everything in the blender and blend until smooth.

adapted from deliciouslivingmag.com

4 eggs
4 egg whites
Freshly ground black pepper
1/4 teaspoon salt
1/4 cup minced fresh basil
10 grape tomatoes, quartered
1/4 cup crumbled goat feta (optional)
1 teaspoon olive oil
1 teaspoon minced garlic
2 cups (1 ounce) baby spinach leaves
____________________________
1. Preheat oven to 375º. Coat four 1-cup ramekins or eight 1/2-cup muffin cups with cooking spray. (a pie pan is fine too if you only want to make one larger frittata.)

2. In a large bowl, beat eggs and egg whites. Add milk, pepper, salt, basil, tomatoes, and cheese.

3. In a medium sauté pan, heat olive oil; sauté garlic over medium heat for about 2 minutes. Add spinach and sauté 1–2 minutes, until spinach is wilted but still a vibrant green. Add spinach mixture to egg mixture. Ladle into prepared ramekins cups, or pie pan.

Bake for 18–20 minutes, until eggs are cooked thoroughly. (They will expand while cooking and will collapse while cooling.) When cool, remove from cups. Refrigerate in an airtight container for up to one week.

Tater tots, make sure yours are gluten free
frozen spinach
eggs
optional- goat or sheep cheese
__________________________

1. I pop the tater tots in the oven, you can make real potatoes if you want or skip the potatoes all together.

2. In a pan I defrost the spinach and get as much of the water out of the pan as possible. The spinach shouldn’t be too wet.

3. Turn off the stove and let it sit while the tater tots cook. When the tater tots are almost done put the spinach back on the stove over medium heat. Add the egg/eggs to the spinach. Stir it around until it is all cooked. Sometimes I add green onion, dill or basil in here too.

4. Put the tater tots on a plate and top with the spinach and eggs. If you want, put grated sheep or goat cheese on top.

There aren’t really measurements for the ingredients, just whatever you think you will eat. I use about 10 tater tots, 1/3-1/2 bag of spinach and 2 eggs for myself.

1/2-1 cup cold rice
1/2-1 avocado
1 TBS olive oil
salt to taste
_____________________

Slice the avocado and place it on the rice. drizzle with oil and sprinkle with salt. Or just mix it all together like I do.

I am only guessing at measurements. I just make recipes up as I go; they usually turn out pretty good.

Ashley van Tol

A friend told me I need to embrace my Lyme. He said I should be thankful for it and to love it. I struggled with that for a while. How in the world could I love my Lyme? I mean, Lyme stole my life! Or did it…

I knew my friend was right. I have been adamant about staying positive since I found out I have Lyme. I see no reason to be angry about it, to let it get me down, or to let it run my life. I am doing everything I can to get healthy. I will get my life back, and it will be better than before.

I finally found a reason to maybe not love my Lyme, but to appreciate it. I have been given the opportunity to explore the interest that I never seemed to find time for in my “real life”. I have had to slow down and just enjoy life and what I have. My family relationships are closer than ever. I get to discover who I am and what is truly important in my life.

I guess I have to thank Lyme for making me a happier, healthier, more loving person.

___________________________________________________________________

I’ve probably had Lyme since I was a kid. I didn’t have any problems until my early 20′s though. It was another 10 years before I was diagnosed with Lyme. I am so glad to know what has been “wrong” with me this whole time.

My pre-diagnosis life was lived as a ski instructor and traveller. I had good and bad health years. 2007/2008 was my last year teaching. I had been really struggling for the previous couple of years and I just couldn’t do it anymore. I was resigned to the fact that I had a sensitive digestive system and decided I was just going to have to learn to live with it.

In April of 08 I went back to school to study graphic design. I got really sick that summer, so it was back to the doctor’s offices for me.

I honestly didn’t know much about Lyme. Neither did the Doctor who diagnosed me. I was given Samento and told I would be fine. It wasn’t until March 09,worse not better, I saw a chiropractor who educated me on the seriousness of Lyme Disease. He lent me the movie “Under Our Skin”, it scared the crap out of my husband and I.

In April 09 I started having really bad neurological problems. I was no longer able to continue with my studies or work. Ego bruised but not broken I dove into the internet looking for answers. I found a wonderful network of friends and supporters who understand Lyme and what I am going through.

I still don’t love my Lyme, but I really can’t complain too much about my life.

-Ashley van Tol

My Symptoms

My Lyme Story

Dr. Joe Jemsek discusses the controversy surrounding Lyme disease and what action needs to be taken to provide patients with better care.

http://www.youtube.com/user/TheJemsekClinic

Gov. M. Jodi Rell announced Sunday that she has signed into law House Bill 6200, which allows physicians to prescribe long-term antibiotics in the treatment of persistent Lyme disease.

The bill, unanimously passed through both houses of the Connecticut General Assembly, allows doctors to go outside standard guidelines without fear of sanctions from state health regulators if the patient’s clinical diagnosis of the deer tick-borne disease and treatment have been documented by a licensed physician.

Follow the link for the whole story:
http://www.thehour.com/story/471445

I have a hard time falling asleep at night because I’m cold. You might think I just need an extra blanket, but I’ve tried it and it doesn’t do anything to help me warm up. It does, after I have finally fallen asleep, cause me to wake back up sweating in the middle of the night. My solution could be a hot shower or bath before bed, but I’m a morning shower type of gal. Instead I bought electric throw blanket from Target (I didn’t want a full blanket, my husband would melt). I turn the blanket on HIGH about an hour before I go to bed. I turn the blanket off when I get in bed. My bed is warm and toasty and my body no longer has to fight to warm itself up, it has a bad track record in the effectively heating itself department.

I recently watched “FOODinc“, an important movie that everyone should see. While the movie had nothing specifically to do with Lyme disease I was surprised to hear something that I had also heard in the movie “Under Our Skin“. Both movies mention a pivotal developement being; in the late 80′s it became legal to patent live organisms. Sounds like this was a huge mistake!

How to Respond to Insurance Denials Based on IDSA Guidelines -Lorraine Johnson,CALDA

Now that the Connecticut Attorney General has released his findings of the antitrust investigation into the IDSA guidelines, what should you do about insurance denials? If you are denied insurance coverage for Lyme disease based on the IDSA guidelines, you should…

Follow this link, find the link to the letter under “Download Recourses” on the left hand side of the site.

http://www.lymedisease.org/resources/handouts.html